In September 2021, Ann Cullen, IPPOSI Patient Eduction Graduate co-authored a publication on “Harmonising the human biobanking consent process: an Irish experience” for HRB Open Research, as part of her involvement with the National Biobank Working Group (NBWG). Speaking about her involvement experience with the NBWG, Ann mentioned “it was through the IPPOSI media training module, I met Rachel Lynch whom we invited to design the biobank schematic used in the paper and on the former HRB-CRCI website. Highlighting once again the importance of patient networks.”
In July, Siobhan Freeney, also a graduate of the IPPOSI Patient Education Programme, co-authored a publication “How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer Research” as part of her involvement with the USA Lobular Breast Cancer Alliance and an international team of researchers.
Earlier in the year, in May, Moira Hanbridge – a third IPPOSI Patient Education Graduate – co-authored a publication “Preparing accessible and understandable clinical research participant information leaflets and consent forms: a set of guidelines from an expert consensus conference” following her involvement in an informed consent project led by University College Dublin, Ireland.
We are very proud of all of our graduates and the contribution that they make to important research across the health sector. We will aim to keep you up to date with further publications resulting from their PPI activities, as they come along.