The project to engage the public on the collection, use and sharing of health information started in 2019 and concluded in June 2021 and it involved public and/or patient representatives at various stages across its lifecycle in order to gain a…
The Health Information and Quality Authority (HIQA) is involving public and/or patient (PPI) representatives in the development of its National Standards for Children’s Social Services. Its aim is to gain insights from people using services as to…
The National Care Experience Programme (NCEP) seeks to improve the quality of health and social care services in Ireland by asking people about their experiences of care and acting on their feedback. It is a joint initiative by the Health…
The Health Information and Quality Authority (HIQA) involved public and/or patient (PPI) representatives in the development of its recommendations for the implementation of a electronic patient summary record in Ireland in order to gain a greater…
The expert advisory group for this health technology assessment (HTA) was established to assess the clinical and economic impact of providing C-reactive protein point-of-care testing to inform the prescribing of antibiotics for patients presenting…
The expert advisory group for this health technology assessment (HTA) was established to assess the clinical and economic impact of a pre-exposure prophylaxis (PrEP) programme for populations at substantial risk of sexual acquisition of HIV. The…
The expert advisory group for this health technology assessment (HTA) was established to assess the clinical and economic impact of transcatheter aortic valve implantation (TAVI) for the treatment of patients with severe symptomatic aortic stenosis…
The HPRA is committed to widening its engagement with patients and patient organisations, to enable a deeper understanding of patient perspectives and experiences in relation to the regulation of health products. The Health Products Regulatory…
The National Research Ethics Committee (NREC) for COVID-19 was the first National Research Ethics Committee (NREC). It was established in early 2020 to deliver a fast-tracked review process for COVID-19 related health research. The National Research…
The Irish National Audit of Stroke (INAS) Governance Committee was established in 2019. It comprises of 17 members, of which two are public and/or patient (PPI) representatives. The role of the public and/or patient (PPI) representatives is equal to…
The National ICU Audit (INICUA) Governance Committee was established in 2013. The Committee collects and reviews health data to complete clinically-led audit of patient care and outcomes in adult and paediatric ICUs. The PPI representatives…
The Irish Heart Attack Audit (IHAA) Governance Committee was established in 2019, after responsibility for the audit of Acute Coronary Syndrome (ACS) care was transferred to the National Office for Clinical Audit (NOCA). The PPI representatives…
The National Clinical Effectiveness Committee (NCEC) was established in 2010, as a partnership of patient safety stakeholders. Its mission is to provide the framework for the national endorsement of clinical guidelines and audit to optimise patient…
The Health Research Consent Declaration Committee (HRCDC) was established as part of the Health Research Regulations under the Data Protection Act of 2018. The purpose of these regulations is to support health research and promote necessary and…
The NCEC was established in 2010, and public and/or patient (PPI) representatives are listed among its members in its first annual report published in 2013. The Committee meets quarterly, and as required. The work of NCEC is ongoing. The National…
The Saolta Hospitals Group Patient Council was established in 2014 to enable patients and their relatives to become active partners in the Saolta Hospitals Group. The Saolta Hospitals Group Patient Council comprises of 17 members, all public and/or…
The Sligo University Hospital Patient Engagement Forum was established in 2018. The Forum plays an important role in helping the hospital shape what we do and how we do it. The Forum meets quarterly. The Sligo University Hospital Patient Engagement…
The South Tipperary General Hospital (STGH) have established a Patient Representatives Service Users Forum. Forum representatives contribute to various projects and initiatives, for instance, one patient representative sits on the Integrated Care…
The UL Hospitals Group Patient Council was established in 2016. The Council enables patients and family members to become active partners in the UL Hospitals Group, and to advise on ways to improve the experience of patients and/or families using…
The Genuity Science established a Strategic Advisory Board in 2019 and Participant Advisory Board (PAB) in 2020. The Boards provide public and/or patient representatives with an interest in genomics research and genomic data the opportunity to…