MSD has engaged patient representatives to learn more about their lived experience. In May 2019, one patient was invited to speak at an MSD lung conference. From April to June 2019, MSD invited 10 patient representatives to participate in a series…
Novartis engages patient representatives to learn more about their lived experience via a mechanism known as Patient Advisory Boards. Advisory Boards are established as and when they are needed and focus on exploring a specific topic or condition.…
In 2019, the Irish Cancer Society invited public and/or patient (PPI) representatives to get involved in its grant review process. Representatives are asked to review sections of grant applications that have been submitted to the Irish Cancer…
The PPI in Research Committee was established in 2020 with the goal of improving Public Patient Involvement (PPI) in research conducted through RCSI Medical Sciences and Healthcare University. The aim of the the Committee is to ensure that patient…
Facilitated by Clinical Research Development Ireland, the National Biobanking Working Group (NBWG) was established in January 2019 to address concerns nationally that researchers had in terms of consent and the use of patients’ samples and data…
The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) invite two patient representatives to join its Steering Committee. The role of the patient representatives is to work with other members of the Steering…
The Trinity Biomedical Sciences Institute (TBSI) organised a national workshop in January 2020 for patients for over 20 patients with specific conditions to co-author patient and public information material. The aim of the workshop was to involve…
The TCD Institute of Population Health at Trinity College Dublin organised a one-day event in February 2019 to invite individuals with experience of autism to share their perspectives with researchers with an interest in autism genomics. The patient…
The PPI Ignite Office at Trinity College Dublin, in collaboration with Fighting Blindness, organised a focus group on 10 October 2019 to celebrate World Sight Day. The event provided an opportunity for over 20 researchers and public and/or patient…
The Patient Voice in Cancer Research (PVCR) is an initiative to actively engage cancer patients, cancer researchers and other interested parties (patient advocates, families, carers, healthcare professionals, policy-makers and those with an interest…
The Conway Institute of Biomolecular and Biomedical Research at University College Dublin organised a series of three, one-day focus groups from February 2019 to June 2020 with the aim of inputting into the development of a Breast Cancer Treatment…
The School of Biomolecular and Biomedical Science at University College Dublin, in collaboration with Fighting Blindness, organised a focus group with five public and/or patient representatives (four of which were patients) on January 2019. The…
The School of Biomolecular and Biomedical Science at University College Dublin organised a focus group with three public and/or patient representatives (two of which were patients) on January 2019. The focus group participants were all selected for…