D1 Now is a project that aims to improve outcomes for young adults living with type 1 diabetes (T1D). The D1 Now project established a Young Adult Panel (YAP) in 2014. The research team, in collaboration with Jigsaw (the National Centre for Youth…
The Diabetes in General Practice College at University College Cork offered a number of different opportunities to public and/or patient involvement representatives. A patient organisation representative (from Diabetes Ireland) was invited to sit on…
Evidence Synthesis Ireland (ESI), an initiative coordinated by NUI Galway, invited six public and/or patient representatives to join its governance structures in March 2020. It has also created opportunities for public and/or patient representatives…
The HRB Primary Care Clinical Trials Network Ireland’s aims to improve individual patient health and health care through the design, conduct and dissemination of high quality, internationally recognised, randomised trials in Irish primary care…
The Irish Centre for High End Computing (hosted at NUI Galway) invited two public and/or patient representatives to join the Advisory Committee overseeing the DASSL Linked Health Data Research Project. The PPI representatives provide a public and…
The Irish Society of Gynaecological Oncology (ISGO) Public and Patient Involvement Group was established in 2016 to build a partnership between the society (clinicians, nurses, scientists) and patients and members of the public. The public and…
The Immune Dysfunction and Frailty in Chroninc Liver Disease and Transplantation research study invited two patient representatives to join its governance structures from Jan-Dec 2020. The representatives were identified from Maynooth University&…
In 2018, the PPI Ignite @ NUI Galway team embarked on a mission to bring about a culture change in health and social care research, so that the people most likely to be impacted by the research findings are involved in, and shape, all stages of that…
The PPI in Research Committee was established in 2020 with the goal of improving Public Patient Involvement (PPI) in research conducted through RCSI Medical Sciences and Healthcare University. The aim of the the Committee is to ensure that patient…
Facilitated by Clinical Research Development Ireland, the National Biobanking Working Group (NBWG) was established in January 2019 to address concerns nationally that researchers had in terms of consent and the use of patients’ samples and data…
The Stool Bank Ireland initiative invited two public and/or patient representatives to join its Steering Committee in October 2020. The representatives joined others from gastroenterology, clinical microbiology, infectious diseases, surgery,…
The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) invite two patient representatives to join its Steering Committee. The role of the patient representatives is to work with other members of the Steering…
The Trinity Biomedical Sciences Institute (TBSI) organised a national workshop in January 2020 for patients for over 20 patients with specific conditions to co-author patient and public information material. The aim of the workshop was to involve…
The TCD Institute of Population Health at Trinity College Dublin organised a one-day event in February 2019 to invite individuals with experience of autism to share their perspectives with researchers with an interest in autism genomics. The patient…
The PPI Ignite Office at Trinity College Dublin, in collaboration with Fighting Blindness, organised a focus group on 10 October 2019 to celebrate World Sight Day. The event provided an opportunity for over 20 researchers and public and/or patient…
The Patient Voice in Cancer Research (PVCR) initiative within the Conway Institute of Biomolecular and Biomedical Research at University College Dublin organised a one-day event in October 2019 to bring together 60 members of the public, cancer…
The Patient Voice in Cancer Research (PVCR) is an initiative to actively engage cancer patients, cancer researchers and other interested parties (patient advocates, families, carers, healthcare professionals, policy-makers and those with an interest…
The Patient Voice in Cancer Research (PVCR) initiative within the Conway Institute of Biomolecular and Biomedical Research at University College Dublin organised a one-day event in February 2020 to explore an innovative new approach to public and/or…
The School of Medicine at the University of Limerick provided an opportunity for four public and/or patient representatives from the PPI Ignite Partners Network to complete a one-day ‘train the trainer’ training to upskill in how to…
The Conway Institute of Biomolecular and Biomedical Research at University College Dublin organised a series of three, one-day focus groups from February 2019 to June 2020 with the aim of inputting into the development of a Breast Cancer Treatment…