The Saolta Hospitals Group Patient Council was established in 2014 to enable patients and their relatives to become active partners in the Saolta Hospitals Group. The Saolta Hospitals Group Patient Council comprises of 17 members, all public and/or…
The Sligo University Hospital Patient Engagement Forum was established in 2018. The Forum plays an important role in helping the hospital shape what we do and how we do it. The Forum meets quarterly. The Sligo University Hospital Patient Engagement…
The South Tipperary General Hospital (STGH) have established a Patient Representatives Service Users Forum. Forum representatives contribute to various projects and initiatives, for instance, one patient representative sits on the Integrated Care…
The UL Hospitals Group Patient Council was established in 2016. The Council enables patients and family members to become active partners in the UL Hospitals Group, and to advise on ways to improve the experience of patients and/or families using…
The Your Voice Matters team within the Office of the Chief Clinical Officer invited 12 public and/or patient representatives to support the development of a survey for the Quit and Stay Quit Programme. PPI representatives worked on the survey from…
The Your Voice Matters team within the Office of the Chief Clinical Officer invited seven public and/or patient representatives to join a working group from June to August 2020 to support the Living Well Programme. PPI representatives were invited…
The Your Voice Matters team within the Office of the Chief Clinical Officer invited one public and/or patient representative to join a national working group tasked with developing a patient experience survey to assess the National Clinical Care…
The Genuity Science established a Strategic Advisory Board in 2019 and Participant Advisory Board (PAB) in 2020. The Boards provide public and/or patient representatives with an interest in genomics research and genomic data the opportunity to…
The Gutcast project started in December 2019, with the aim of creating a podcast series to educate and inform about the health issues facing people living with Crohn’s Disease or Colitis in Ireland. The intiative represents a partnership between…
MSD has engaged patient representatives to learn more about their lived experience. In May 2019, one patient was invited to speak at an MSD lung conference. From April to June 2019, MSD invited 10 patient representatives to participate in a series…
Novartis engages patient representatives to learn more about their lived experience via a mechanism known as Patient Advisory Boards. Advisory Boards are established as and when they are needed and focus on exploring a specific topic or condition.…
Croí, the Heart & Stroke Charity, offered a number of different opportunities to public and/or patient involvement representatives throughout 2020. An Adherence to Cardiac Rehab in Community Setting Research Study established an Advisory…
The Worldwide Cystinosis Patient Community Advisory Boards (CABs) is supported by the EURORDIS EUROCAB Programme which assists patient organisations in setting up the CAB and offers guidance on common principles and tools for engagement, including…
In 2019, the Irish Cancer Society invited public and/or patient (PPI) representatives to get involved in its grant review process. Representatives are asked to review sections of grant applications that have been submitted to the Irish Cancer…
The Active Neuro project, funded by Slaintecare, established a Participant Forum of 12 patient representatives to support the implementation of the research study. Patient representatives were selected by the patient organisation. Representatives…
D1 Now is a project that aims to improve outcomes for young adults living with type 1 diabetes (T1D). The D1 Now project established a Young Adult Panel (YAP) in 2014. The research team, in collaboration with Jigsaw (the National Centre for Youth…
The Diabetes in General Practice College at University College Cork offered a number of different opportunities to public and/or patient involvement representatives. A patient organisation representative (from Diabetes Ireland) was invited to sit on…
Evidence Synthesis Ireland (ESI), an initiative coordinated by NUI Galway, invited six public and/or patient representatives to join its governance structures in March 2020. It has also created opportunities for public and/or patient representatives…
The HRB Primary Care Clinical Trials Network Ireland’s aims to improve individual patient health and health care through the design, conduct and dissemination of high quality, internationally recognised, randomised trials in Irish primary care…
The Irish Centre for High End Computing (hosted at NUI Galway) invited two public and/or patient representatives to join the Advisory Committee overseeing the DASSL Linked Health Data Research Project. The PPI representatives provide a public and…