The Your Voice Matters team within the Office of the Chief Clinical Officer invited seven public and/or patient representatives to join a working group from June to August 2020 to support the Living Well Programme. PPI representatives were invited…
The Your Voice Matters team within the Office of the Chief Clinical Officer invited one public and/or patient representative to join a national working group tasked with developing a patient experience survey to assess the National Clinical Care…
The Active Neuro project, funded by Slaintecare, established a Participant Forum of 12 patient representatives to support the implementation of the research study. Patient representatives were selected by the patient organisation. Representatives…
D1 Now is a project that aims to improve outcomes for young adults living with type 1 diabetes (T1D). The D1 Now project established a Young Adult Panel (YAP) in 2014. The research team, in collaboration with Jigsaw (the National Centre for Youth…
The HRB Primary Care Clinical Trials Network Ireland’s aims to improve individual patient health and health care through the design, conduct and dissemination of high quality, internationally recognised, randomised trials in Irish primary care…
The Irish Society of Gynaecological Oncology (ISGO) Public and Patient Involvement Group was established in 2016 to build a partnership between the society (clinicians, nurses, scientists) and patients and members of the public. The public and…
Facilitated by Clinical Research Development Ireland, the National Biobanking Working Group (NBWG) was established in January 2019 to address concerns nationally that researchers had in terms of consent and the use of patients’ samples and data…
The Health Research Board CRCI (Clinical Research Coordination Ireland), supported by IPPOSI, established a Clinical Research Public and Patient Involvement (PPI) Working Group in 2018. The task of the working group is to romote active and…