HSE Technical Review Committee for Rare Diseases

The HSE Technical Review Committee for Rare Diseases is the national committee, established by the HSE in 2018, to make recommendations on clinical issues around the reimbursement of a medicine. The aim of the Committee is to ensure that the perspective of patients and clinicians inform the final recommendation on pricing and reimbursement made by the HSE Drugs Group to the HSE Senior Management. The Committee meets at the request of the HSE Drugs Group. In 2020 no requests were received by the Committee until August when a request was received from the HSE Drugs Group to advise on two medicines.