The Patient Voice in Cancer Research (PVCR) initiative within the Conway Institute of Biomolecular and Biomedical Research at University College Dublin organised a one-day event in October 2019 to bring together 60 members of the public, cancer patients, carers, advocates and researchers. The aim of the event was to explore patient and researcher perspectives around obtaining consent from patients to use their samples and data for research biobanks. Participants provied input into the content and language of documents used by researchers nationally when sourcing participants to take part in health research biobanks.

The patient representatives were selected from nominations provided by the patient organisation relevant to this condition. The representatives were provided with a description of the role.