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The Trinity Biomedical Sciences Institute (TBSI) organised a national workshop in January 2020 for patients for over 20 patients with specific conditions to co-author patient and public information material. The aim of the workshop was to involve patients in the design and development of the material to ensure that the material benefitted from a full understanding of the disease diagnosis and treatment pathway. The workshop allowed patients to interact with clinicians and scientists, and several patients and researchers continued their involvement and wrote grant proposals together.