Areas of interest: Access to Medicines, access to medical devices, clinical trials, digital health, arthritis, cancer

Areas of interest: MS, access to medicines, clinical research, clinical trials, integrated care, service improvement, health policy, digital health, patient education.

Area of interest: Rare diseases, access to medicines, medical cannabis clinical trials. clinical research, integrated care, digital health. PPI experience: Patient representative on various committees and working groups for ehealth, digital health, informed consent, and cervical check.

Area of interest: PPI in clinical studies, access to medicines, access to medical devices, clinical research, clinical trials, service improvement, health policy, digital health, health information, patient education. PPI experience: 6+ years of involvement with research and clinical trials, professional experience with ICON Plc, RCSI and the Rotunda hospital.

Area of interest: Rare diseases, Inborn errors of protein metabolism, Phenylketonuria, access to medicines, access to medical devices, clincial research, clinical trials, integrated care, service improvement, healht policy, digital helaht, health information, patient education. PPI experience: Member of National Rare Disease Taskforce, Member of the UCD PPI Ignite Executive Committee, co-researcher with UCD PPI Ignite Raindrop Rare Disease partnership project, lead researcher with DCU PPI Ignite, co-applicant and PPI advisory on HRB Collaborative Doctoral Award to build research capacity for rare diseases, co-design of care pathway with National Rare Disease Office, representative for patient submission to the NCPE, undergrad and postgrad research supervisor, conference speaker.

Area of interest: Vasculitis, rare diseases, service improvement, health policy, digital health, health information, biobanking, patient education. PPI experience: Northern Ireland Rare Disease Partnership Board of Directors, Board of Vasculitis International, Patient representative in Irish Rare Kidney Disease Biobank and Registry Steering Committee, European Research Network (ERN) RITA , HELICAL Project, FAIRVASC project, Collaborative work with Queens University Belfast and University College Dublin, Collaborative work with Vifor in creating ‘See Me, Hear Me’ and ‘Understanding AAV’ sites for patients and healthcare professionals respectively

Area of interest: Multiple Sclerosis, Access to medical devices, Digital health, Health information. PPI Experience: Experienced patient advocate covering a range of grassroots activism,digital health education, HIQA advisory groups and Department of Health patient consultation

Area of interest: Cancer, palliative care. PPI experience: Patient representative on the HSE National Palliative Care Clinical Programme Working Group, a member of Voices4Care, patient representative with the All Ireland Institute of Hospice and Palliative Care, patient reviewer for Our Lady’s Hospice website, patient contributor Delphi Study, patient mentor to PHD students on projects relating to Palliative Care.

Area of interest: cancer, rare disease, clinical research, clinical trials, digital health, health information, biobanking. PPI experience: Member of numerous Steering committees including HIQA, HSE and HPRA. Board Member NCBRS, Chair Participant advisory board, Genuity Science. Involvement in numerous discussion panels regarding patient involvement. EUPATI Patient expert for digital health project as well as ‘Patient Dragon’ assignment for an MSC group in Digital Health.